Comments on: Crohns – Getting the diagnosis right http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/ Just another WordPress weblog Sat, 28 Aug 2010 11:00:42 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: steve http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/comment-page-1/#comment-9413 steve Sun, 25 Jul 2010 16:21:13 +0000 http://blog.nutricia.com/?p=33#comment-9413 Hi.. im really sorry you are bad like this. I have crohns but a resection make it better for 20years. Only now is it back again. I realy really feel bad for you.. My only advise might be to try taking fish oil, and a good probiotic.. i take a vegain one which helped for me and LDN - naltrexone. Both of these are not regular treatments.. and my problems are a lot less bad than yours.. so maybe my advise is not suitable. but it might help.. Hi.. im really sorry you are bad like this. I have crohns but a resection make it better for 20years. Only now is it back again. I realy really feel bad for you..

My only advise might be to try taking fish oil, and a good probiotic.. i take a vegain one which helped for me and LDN – naltrexone.
Both of these are not regular treatments.. and my problems are a lot less bad than yours.. so maybe my advise is not suitable. but it might help..

]]> By: sadasd http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/comment-page-1/#comment-8328 sadasd Thu, 10 Dec 2009 18:52:15 +0000 http://blog.nutricia.com/?p=33#comment-8328 I know this is an old post but i hope your doing well. I know what you have went through and i know how tough it is. I was diagnosed at 18 and i only got worse after diagnosis and all the medications. I ended up having emergency surgery at 23 because my colon burst ( not fun). After i recovered from surgery, which was 1 month intensive care, i felt immediately better. Im 29 now and have had a colostomy bag which i can have reversed whenever( which i havent reversed yet) for the past 7 years almost. Let me encourage you that this disease shall pass to. Have some faith in God. Also, you havent mentioned Remicade in your post. This is a wonder drug for this disease and i urge you to check into it. I know this is an old post but i hope your doing well. I know what you have went through and i know how tough it is. I was diagnosed at 18 and i only got worse after diagnosis and all the medications. I ended up having emergency surgery at 23 because my colon burst ( not fun). After i recovered from surgery, which was 1 month intensive care, i felt immediately better. Im 29 now and have had a colostomy bag which i can have reversed whenever( which i havent reversed yet) for the past 7 years almost. Let me encourage you that this disease shall pass to. Have some faith in God. Also, you havent mentioned Remicade in your post. This is a wonder drug for this disease and i urge you to check into it.

]]> By: Andreia http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/comment-page-1/#comment-4098 Andreia Tue, 30 Jun 2009 22:55:24 +0000 http://blog.nutricia.com/?p=33#comment-4098 I stumbled upon your blog entry and can relate to what you have suffered with. I too have had the disease for over 3 years and have just been diagnosed recently. Same scenario where I was hospitalized repeatedly and misdiagnosed until I was persistent enough to request a GI specialist who finally diagnosed me with Crohns. Hang in there, it takes time but the symptoms eventually do go into remission. Following a very strict diet and lifestyle, you can start to have a 'normal' life again. You are not alone in this battle. Good luck, Andreia I stumbled upon your blog entry and can relate to what you have suffered with. I too have had the disease for over 3 years and have just been diagnosed recently. Same scenario where I was hospitalized repeatedly and misdiagnosed until I was persistent enough to request a GI specialist who finally diagnosed me with Crohns.

Hang in there, it takes time but the symptoms eventually do go into remission. Following a very strict diet and lifestyle, you can start to have a ‘normal’ life again.

You are not alone in this battle.

Good luck,

Andreia

]]> By: Vince Delmonte http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/comment-page-1/#comment-1925 Vince Delmonte Wed, 15 Apr 2009 09:57:51 +0000 http://blog.nutricia.com/?p=33#comment-1925 After reading the article, I feel that I really need more information on the topic. Could you suggest some resources please? After reading the article, I feel that I really need more information on the topic. Could you suggest some resources please?

]]> By: KIM MCCLENNY http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/comment-page-1/#comment-594 KIM MCCLENNY Fri, 02 Jan 2009 18:51:33 +0000 http://blog.nutricia.com/?p=33#comment-594 MY DAUGHTER IS 17 NOW AND HAS BEEN SICK FOR ALMOST 4 YEARS. THE DOCTOR SHE IS NOW SEEING BELIEVES SHE MAY HAVE CROHN'S - ITS HARD TO TALK WITH HER BECAUSE SHE THINKS AS A MOM I CANT UNDERSTAND - IF YOU HAVE ANY WORDS OF WISDOM OR CAN JUST GIVE HER ANY INFO ON THIS PLEASE SEND HER A MESSAGE IF YOU ARE UP TO IT - AND GOOD LUCK I'M SORRY YOUR TOO YOUNG FOR LIFE TO BE SO PAINFUL MY DAUGHTER IS 17 NOW AND HAS BEEN SICK FOR ALMOST 4 YEARS. THE DOCTOR SHE IS NOW SEEING BELIEVES SHE MAY HAVE CROHN’S – ITS HARD TO TALK WITH HER BECAUSE SHE THINKS AS A MOM I CANT UNDERSTAND – IF YOU HAVE ANY WORDS OF WISDOM OR CAN JUST GIVE HER ANY INFO ON THIS PLEASE SEND HER A MESSAGE IF YOU ARE UP TO IT – AND GOOD LUCK I’M SORRY YOUR TOO YOUNG FOR LIFE TO BE SO PAINFUL

]]> By: Daniel http://blog.nutricia.com/2008/07/21/crohns-getting-the-diagnosis-right/comment-page-1/#comment-532 Daniel Wed, 17 Dec 2008 08:05:55 +0000 http://blog.nutricia.com/?p=33#comment-532 Hi Kyle, I'm sorry about your suffering. I wanted to let you know that I think its great that you are studying to be a doctor. So many people out there are not suffering from any particular disease and never end up doing anything with their lives to help others. So hang in there and give your all to become a doctor! No matter how hard it is you'll be glad you did it when its all said and done. Also, have you tried any of these remedies: http://www.edgarcayce.org/health/database/health_resources/crohns-disease.asp I don't know of anyone with Crohn’s Disease who tried them but I have a friend who suffered from arthritis for many years and he was completely cured with an Edgar Cayce remedy! So who knows - it might cure or at least help your Crohn’s Disease too! Hang in there, Daniel Hi Kyle,

I’m sorry about your suffering.
I wanted to let you know that I think its great that you are studying to be a doctor. So many people out there are not suffering from any particular disease and never end up doing anything with their lives to help others.
So hang in there and give your all to become a doctor! No matter how hard it is you’ll be glad you did it when its all said and done.
Also, have you tried any of these remedies:
http://www.edgarcayce.org/health/database/health_resources/crohns-disease.asp
I don’t know of anyone with Crohn’s Disease who tried them but I have a friend who suffered from arthritis for many years and he was completely cured with an Edgar Cayce remedy! So who knows – it might cure or at least help your Crohn’s Disease too!

Hang in there,

Daniel

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