Comments on: Learning about PKU – One boyfriends odyssey! http://blog.nutricia.com/2008/12/01/learning-about-pku-one-boyfriends-odyssey/ Just another WordPress weblog Sat, 28 Aug 2010 11:00:42 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: rachel http://blog.nutricia.com/2008/12/01/learning-about-pku-one-boyfriends-odyssey/comment-page-1/#comment-6805 rachel Sun, 18 Oct 2009 12:57:36 +0000 http://blog.nutricia.com/?p=63#comment-6805 hiya, as a mother of an 11 month old boy who has pku, i also agree with your reply. i also found it amazing to here your daughter was not diagnosed til she was one! i suppose we should be grateful cos lewis was diagnosed at 9 days. how on earth did it not get picked up sooner? its great she's doing well now though. can't imagine how you must have felt because lewis' levels fluctuate very easily so worry myself sick thinking of how its damaging him. but hearing this remarkable story is inspiring and makes me feel more positive of this horrible condition. thanks, rachel hiya, as a mother of an 11 month old boy who has pku, i also agree with your reply. i also found it amazing to here your daughter was not diagnosed til she was one! i suppose we should be grateful cos lewis was diagnosed at 9 days. how on earth did it not get picked up sooner? its great she’s doing well now though. can’t imagine how you must have felt because lewis’ levels fluctuate very easily so worry myself sick thinking of how its damaging him. but hearing this remarkable story is inspiring and makes me feel more positive of this horrible condition.

thanks, rachel

]]> By: michelle http://blog.nutricia.com/2008/12/01/learning-about-pku-one-boyfriends-odyssey/comment-page-1/#comment-660 michelle Sun, 18 Jan 2009 19:10:15 +0000 http://blog.nutricia.com/?p=63#comment-660 My daughter has PKU. I hope that when she grows up she may find a partner as involved as you are. Here's a unique twist to My baby's story: she was diagnosed late. She was already one year old. She is now three and recovering nicely... My daughter has PKU. I hope that when she grows up she may find a partner as involved as you are. Here’s a unique twist to My baby’s story: she was diagnosed late. She was already one year old. She is now three and recovering nicely…

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