We would like to invite you to take part in a survey being run by Coventry University and Sheffield Children’s NHS Trust.
The survey is concerned with newborn screening that is undertaken in the first 5-8 days of a baby’s life (the ‘heel prick’ test). From the blood sample taken it is possible to recognise some disorders early in a baby’s life which if left untreated would cause serious health problems. As part of a research project it is proposed to extend screening to test for additional inherited metabolic diseases.
The survey is open to anyone but we are especially interested in the unique views of parents of children affected by inherited metabolic conditions.
We are interested in your views on how information is given about this testing and how it could be improved. This is not a test and there are no right or wrong answers!
Once you have completed the survey you will be given the opportunity to enter into a free prize draw for £100 worth of vouchers! It should take about 20 minutes of your time.
The link to the online survey is:
http://www.surveymonkey.com/s.aspx?sm=_2byOu2FjRu9kbR_2fgN8AssKA_3d_3d
If you have any queries about this research please email Louise Moody (L.Moody@coventry.ac.uk).