My story is below and I found out about Urea Cycle Disorders and I wanted to tell you about my twenty five year old fiancé. From what I understand, Baylor University, the Mayo Clinic in Minnesota and a university in California have all been involved in studying cultures provided by Good Samaritan Hospital in Phoenix for Joseph Patrick Phillips. Would you please help me to crusade against it happening to others. Your reply would be deeply appreciated. Read the rest of this entry
Archive for June, 2009
Urea Cycle Disorders – The hidden danger
Tuesday, June 23rd, 2009Tags: Inherited Metabolic Disorders, metabolic, metabolic disorder, urea cycle disorders
A teenagers view on living with PKU
Tuesday, June 2nd, 2009I am 15 years old. I have PKU so cannot eat food high in protein such as most dairy products, eggs, meat or fish. Also, I cannot have any drinks or food that has aspartame in, this is a sweetener but is also high in phe which is what my body can’t deal with. Read the rest of this entry
Tags: PKU and Children, Thoughts on PKU