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  • Maternal PKU – Part 2: Twins

    This is part 2 of Angela’s story on PKU and Pregnancy.... Read more

  • Maternal PKU – Part 1

    During a recent study day in London, Angela Thomas shared her experience of tackling the subject of PKU and Pregnancy.... Read more

  • Specific nutrition as an integrated part of pressure ulcer care

    Pressure ulcers are a common problem in all healthcare sectors, affecting quality of life and increasing healthcare costs. Providing sufficient amounts of protein... Read more

  • Targeting immunity: an illustration of HIV disease

    Infection with the human immunodeficiency virus (HIV) results in progressive destruction of the immune system, ultimately resulting in opportunistic infections and AIDS. HIV-infection, affecting 40 million ... Read more

  • Immunopharmacology of non-digestible carbohydrates, a breakthrough for clinical nutrition?

    Early in human history, nutrition and pharmacology were closely linked as people derived their medicines ... Read more

Archive for the ‘Thoughts on PKU’ Category

Maternal PKU – Part 2: Twins

Friday, February 19th, 2010

This is part 2 of Angela’s story on PKU and Pregnancy. In this video blog she focuses on:

Exchanges.
Travelling and Socialising.
Morning Sickness.
The first Scan.
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Maternal PKU – Part 1

Monday, January 18th, 2010

During a recent study day in London, Angela Thomas shared her experience of tackling the subject of PKU and Pregnancy. This video blog focuses on the need to go on a pre-conception diet. She talks about her concerns with regard to managing exchanges and what she was able to eat.

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A teenagers view on living with PKU

Tuesday, June 2nd, 2009

I am 15 years old. I have PKU so cannot eat food high in protein such as most dairy products, eggs, meat or fish. Also, I cannot have any drinks or food that has aspartame in, this is a sweetener but is also high in phe which is what my body can’t deal with. Read the rest of this entry

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Annual Low Protein Living Weekend – Ireland

Friday, May 8th, 2009

April 3rd – 5th  2009, saw the second Annual Low Protein Living Weekend take place in Mount Wolsley in Tullow, Co. Carlow. We had 143 attendees participate over the weekend. This was almost double the numbers that attended last year. The weekend began on Friday evening and finished Sunday afternoon. Read the rest of this entry

Newborn Screening Survey Invite

Monday, March 16th, 2009

We would like to invite you to take part in a survey being run by Coventry University and Sheffield Children’s NHS Trust.

The survey is concerned with newborn screening that is undertaken in the first 5-8 days of a baby’s life (the ‘heel prick’ test).  From the blood sample taken it is possible to recognise some disorders early in a baby’s life which if left untreated would cause serious health problems. As part of a research project it is proposed to extend screening to test for additional inherited metabolic diseases.

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Experiences going off diet – PKU

Wednesday, February 25th, 2009

I thought I’d share my experiences with going off diet and my experiences with the diet in general.

As a kid, I was eating mainly carbs and fats and lots of fruit, but very small amounts. I was a tearaway with ADHD so I was burning through energy like no tomorrow. As a result, I was a pretty lean kid and my dieticians expressed concern that while I was a tall child, I was pretty light.

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PKU – What it means for my son

Friday, January 30th, 2009

Birthday cake, a hot dog, even a McDonald’s Happy Meal are all off limits to our six-year-old son James.

James doesn’t have food allergies, though. He suffers from PKU, which drastically limits his diet for the rest of his life. PKU means James’ body can’t metabolize phenylalanine, one of the building blocks of protein.

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London Low Protein Cookery Demo

Monday, January 19th, 2009

Nutricia held another of our low protein cookery days on the 14th January 2009 at The Cookery School, London. The aim of the day was to provide Health Care Professionals (HCPs), with practical tips and advice to pass on to the patients they have who follow a restricted, low protein diet. The group was made up of mainly dietitians but there was also a dietetic chef who didn’t have much experience in this area.

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My Special Diet

Wednesday, January 14th, 2009

My name is Julie and I have PKU. I wanted to take a few moments to share my experiences with you. I am 22 and I have 3 brothers, but I am the only one with this condition.As a child I can remember feeling a little different particularly at meal times. My parents were great though: there were always making stories up about my special diet. My brothers, who are all older than me were also involved my education.

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Learning about PKU – One boyfriends odyssey!

Monday, December 1st, 2008

My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want to put across the other side of it.As you may have guessed, I am non PKU, in fact had no idea of what PKU was until I met Jill.

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