This is part 2 of Angela’s story on PKU and Pregnancy. In this video blog she focuses on:
Exchanges.
Travelling and Socialising.
Morning Sickness.
The first Scan.
Read the rest of this entry
This is part 2 of Angela’s story on PKU and Pregnancy. In this video blog she focuses on:
Exchanges.
Travelling and Socialising.
Morning Sickness.
The first Scan.
Read the rest of this entry
Nutricia is pleased to announce a series of Paediatric Nutrition Symposia for Dietitians and healthcare professionals. The study days will be held in London on Tuesday, June 30th and in Leeds on Tuesday, July 7th.
Chaired by two of the UK’s best known Paediatric Gastroenterologists:
Dr Peter Sullivan (London) and Dr John Puntis (Leeds) Read the rest of this entry
This is addressed to adult women with Phenylketonuria who may become pregnant, may already be pregnant, or have had children. I am a 44 year old mother with Phenylketonuria (pku for short). I have 4 sons, ages 13 yrs., 12 year old twins, and an 11 yr. old. I was late-diagnosed at 4 1/2 years old. Pku is a rare metabolic disorder that must be diagnosed and treatment begun at birth to prevent profound mental retardation. Read the rest of this entry
One thing that I have learned is this – listen to your body. Usually, my body will tell me when a Crohn’s flare is coming. But sometimes I just don’t listen very well. Read the rest of this entry
Nutricia Ireland will also be hosting it’s 5th Annual Paediatric Symposium in the Gresham Hotel, Dublin on 08th May 2009
Issues being discussed range from Gastrostomy Feeding in Paediatric Neurodisabilities to Ketogenic Therapy in Epilepsy: Bridging the Gap between Evidence and Medical Practice.
This symposium will be of interest to Dietitians, Paediatricians, Neonatologists, Neurologists, Neonatal and Paediatric Nurses. Read the rest of this entry
The NSPKU again ran a hugely successful family weekend in Torquay, a beautiful seaside resort in South West England. It attracted visitors from Europe and as far away as Brazil.
As always it brings together parents, patients, carers, families and friends, allowing them to share their experiences and concerns. It also allows them to interact informally with dietitians and other healthcare professionals.
At this time of year people travel far and wide to visit friends and families and although Crohn’s Disease is a difficult disorder, you should not keep yourself from living the best life possible because you suffer from this disorder. You should continue in your life as you would without Crohn’s, although a few more precautions may be necessary when traveling, this will ensure a smooth and enjoyable trip.