Thursday, April 30th, 2009
One thing that I have learned is this – listen to your body. Usually, my body will tell me when a Crohn’s flare is coming. But sometimes I just don’t listen very well. Read the rest of this entry
Friday, April 3rd, 2009
We are parents to three children with eosinophilic disorders. This is our story so far.
We are Michelle and Steve we have three children, All of them have Eosinophilic Entocolitis (EC,EG,ED)and our middle son also has eosinophilic oesophagutis (EE)accompanied by
Multiple food allergies and multiple drug allergies. Read the rest of this entry
Wednesday, April 1st, 2009
Nutricia Ireland will also be hosting it’s 5th Annual Paediatric Symposium in the Gresham Hotel, Dublin on 08th May 2009
Issues being discussed range from Gastrostomy Feeding in Paediatric Neurodisabilities to Ketogenic Therapy in Epilepsy: Bridging the Gap between Evidence and Medical Practice.
This symposium will be of interest to Dietitians, Paediatricians, Neonatologists, Neurologists, Neonatal and Paediatric Nurses. Read the rest of this entry
Wednesday, April 1st, 2009
The NSPKU again ran a hugely successful family weekend in Torquay, a beautiful seaside resort in South West England. It attracted visitors from Europe and as far away as Brazil.
As always it brings together parents, patients, carers, families and friends, allowing them to share their experiences and concerns. It also allows them to interact informally with dietitians and other healthcare professionals.
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Monday, March 23rd, 2009
Nutricia are again providing another great opportunity for Healthcare Professionals to develop a greater understanding of Food Allergy and the Gut.
They have designed a study day in conjunction with The Hospital for Sick Children Great Ormond Street Paediatric Gastroenterology Department. It focuses on practical solutions for managing gastrointestinal symptoms of allergy in children.
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Tags: Cows Milk Allergy
Monday, March 16th, 2009
We would like to invite you to take part in a survey being run by Coventry University and Sheffield Children’s NHS Trust.
The survey is concerned with newborn screening that is undertaken in the first 5-8 days of a baby’s life (the ‘heel prick’ test). From the blood sample taken it is possible to recognise some disorders early in a baby’s life which if left untreated would cause serious health problems. As part of a research project it is proposed to extend screening to test for additional inherited metabolic diseases.
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Wednesday, February 25th, 2009
I thought I’d share my experiences with going off diet and my experiences with the diet in general.
As a kid, I was eating mainly carbs and fats and lots of fruit, but very small amounts. I was a tearaway with ADHD so I was burning through energy like no tomorrow. As a result, I was a pretty lean kid and my dieticians expressed concern that while I was a tall child, I was pretty light.
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Tags: back on diet, PKU, Thoughts on PKU
Friday, January 30th, 2009
Birthday cake, a hot dog, even a McDonald’s Happy Meal are all off limits to our six-year-old son James.
James doesn’t have food allergies, though. He suffers from PKU, which drastically limits his diet for the rest of his life. PKU means James’ body can’t metabolize phenylalanine, one of the building blocks of protein.
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Tags: Inherited Metabolic Disorders, metabolic disorder, PKU and Children, Thoughts on PKU
Monday, January 19th, 2009
Nutricia held another of our low protein cookery days on the 14th January 2009 at The Cookery School, London. The aim of the day was to provide Health Care Professionals (HCPs), with practical tips and advice to pass on to the patients they have who follow a restricted, low protein diet. The group was made up of mainly dietitians but there was also a dietetic chef who didn’t have much experience in this area.
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Tags: cooking metabolic, Diet Tips, metabolic, metabolic awareness, metabolic disorder
Wednesday, January 14th, 2009
My name is Julie and I have PKU. I wanted to take a few moments to share my experiences with you. I am 22 and I have 3 brothers, but I am the only one with this condition.As a child I can remember feeling a little different particularly at meal times. My parents were great though: there were always making stories up about my special diet. My brothers, who are all older than me were also involved my education.
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Tags: Add new tag, My Special Diet, PKU