Nutricia held another of our low protein cookery days on the 14th January 2009 at The Cookery School, London. The aim of the day was to provide Health Care Professionals (HCPs), with practical tips and advice to pass on to the patients they have who follow a restricted, low protein diet. The group was made up of mainly dietitians but there was also a dietetic chef who didn’t have much experience in this area.
Posts Tagged ‘metabolic awareness’
London Low Protein Cookery Demo
Monday, January 19th, 2009Tags: cooking metabolic, Diet Tips, metabolic, metabolic awareness, metabolic disorder
Learning about PKU – One boyfriends odyssey!
Monday, December 1st, 2008My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want to put across the other side of it.As you may have guessed, I am non PKU, in fact had no idea of what PKU was until I met Jill.
Tags: metabolic awareness, metabolic disorder, PKU, Thoughts on PKU
Scottish IMD day- Crieff Hydro Hotel 22/11/08
Tuesday, November 25th, 2008The beautiful Crieff Hydro Hotel was the location for what was hopefully the first of many meetings specifically aimed at people with inherited metabolic disorders (IMD) as well as their parents and carers. This meeting was to give people who live in Scotland, a chance to meet others who are similarly affected by IMD’s and Nutricia was delighted to support this event.
Tags: Inherited Metabolic Disorders, Low Protein, metabolic, metabolic awareness
Starting the PKU pre-conception diet
Wednesday, October 8th, 2008It’s been a while since I’ve posted anything, and a lot has happened in the last month and a half. The biggest thing is that I got married! My husband and I had a lovely wedding in Australia and spent three weeks in South East Queensland having our honeymoon.
Tags: back on diet, maternal pku, metabolic awareness, PKU
Birmingham Children’s Hospital IMD Games 2008
Monday, September 29th, 2008On the 28th September 2008, over 100 children converged at the Alexander Stadium, Birmingham, to participate in a special day. What made the day so special was that the children participating had all been affected in one way or another, by an Inborn Metabolic Disease.
Tags: Add new tag, IMD, metabolic awareness, metabolic disorder
Inherited Metabolic Disorders
Tuesday, August 26th, 2008Inherited Metabolic Disorders are rare but there are over 1000 known types. Such disorders are treatable with special diets (in some cases drug therapy may also be used).
Tags: Add new tag, Inherited Metabolic Disorders, metabolic awareness, PKU
Getting back ‘on diet’ – PKU
Wednesday, August 20th, 2008Hi my name is Andrew i am 36 years old, when i was younger i was on a strict diet which was controlled by my mum. When i got to my teens, the doctors wanted me off the diet. When the doctors told me this i said no. I was to used to the diet (low pro) however over the years things started to slip away till i was not on the diet.
Tags: metabolic awareness, PKU, Thoughts on PKU
PKU and the 3 R’s
Tuesday, August 19th, 2008I remember when I first started seeing my dietitian on my return to the diet, sounds a bit like a movie title! PKU and the return of the Diet!! She explained to me that to help maintain consistently low blood Phe levels, management will involve a three-pronged approach known as the 3 R’s: Record, Restrict, and Replace. I must Record the amount of Phe I consume, Restrict my diet to the right amount of low-Phe foods, and replace those higher-Phe foods with low-Phe alternatives, such as Phe-free protein supplements like Lophlex and Add-ins. I know this type of management is not a cure, but it has been effective in helping to prevent many of the symptoms of PKU in myself such as the drowsiness and bad temper. So remember the 3 R’s: Record, Restrict, and Replace.
Tags: 3 r's, Add new tag, back on diet, diet, metabolic awareness, PKU, Thoughts on PKU
A single mothers perspective on PKU. Part IV: What happens next?
Wednesday, July 2nd, 2008Time seemed to have stopped after I was told that my baby had PKU. The midwife had gone and it had only just sunk in. I now had so many questions but where do I get the answers: there was no internet in those days.
Tags: metabolic, metabolic awareness, PKU, Single Mother
Phenylketonuria
Tuesday, July 1st, 2008HOW IS THIS DISEASE PASSED ON?
The metabolic disease phenylketonuria (PKU) is transferred to people through the genes they inherit from their parents. There have been cases of metabolic diseases being caused from the over consumption of a certain food and also via exposure to drugs that have caused a dormant gene to become active. This is exceptionally rare though and diseases such as PKU are detected at birth.
Tags: metabolic awareness, metabolic disorder, Phenylketonuria, PKU