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  • Maternal PKU – Part 2: Twins

    This is part 2 of Angela’s story on PKU and Pregnancy.... Read more

  • Maternal PKU – Part 1

    During a recent study day in London, Angela Thomas shared her experience of tackling the subject of PKU and Pregnancy.... Read more

  • Specific nutrition as an integrated part of pressure ulcer care

    Pressure ulcers are a common problem in all healthcare sectors, affecting quality of life and increasing healthcare costs. Providing sufficient amounts of protein... Read more

  • Targeting immunity: an illustration of HIV disease

    Infection with the human immunodeficiency virus (HIV) results in progressive destruction of the immune system, ultimately resulting in opportunistic infections and AIDS. HIV-infection, affecting 40 million ... Read more

  • Immunopharmacology of non-digestible carbohydrates, a breakthrough for clinical nutrition?

    Early in human history, nutrition and pharmacology were closely linked as people derived their medicines ... Read more

Posts Tagged ‘PKU’

Maternal PKU – Part 2: Twins

Friday, February 19th, 2010

This is part 2 of Angela’s story on PKU and Pregnancy. In this video blog she focuses on:

Exchanges.
Travelling and Socialising.
Morning Sickness.
The first Scan.
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Maternal PKU – Part 1

Monday, January 18th, 2010

During a recent study day in London, Angela Thomas shared her experience of tackling the subject of PKU and Pregnancy. This video blog focuses on the need to go on a pre-conception diet. She talks about her concerns with regard to managing exchanges and what she was able to eat.

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Experiences going off diet – PKU

Wednesday, February 25th, 2009

I thought I’d share my experiences with going off diet and my experiences with the diet in general.

As a kid, I was eating mainly carbs and fats and lots of fruit, but very small amounts. I was a tearaway with ADHD so I was burning through energy like no tomorrow. As a result, I was a pretty lean kid and my dieticians expressed concern that while I was a tall child, I was pretty light.

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My Special Diet

Wednesday, January 14th, 2009

My name is Julie and I have PKU. I wanted to take a few moments to share my experiences with you. I am 22 and I have 3 brothers, but I am the only one with this condition.As a child I can remember feeling a little different particularly at meal times. My parents were great though: there were always making stories up about my special diet. My brothers, who are all older than me were also involved my education.

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Learning about PKU – One boyfriends odyssey!

Monday, December 1st, 2008

My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want to put across the other side of it.As you may have guessed, I am non PKU, in fact had no idea of what PKU was until I met Jill.

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PKU, PKU, PKU

Monday, October 13th, 2008

When Jeff and I got married we knew nothing about PKU. Even during the first two years of us building a home together we were oblivious about this Metabolic Disorder. We found out all about it with a shock when we had our first child. Little did we know that we were in fact carriers of this disease. Apparently if you are a carrier, there is a 25 percent chance that your child will end up with PKU.

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Starting the PKU pre-conception diet

Wednesday, October 8th, 2008

It’s been a while since I’ve posted anything, and a lot has happened in the last month and a half. The biggest thing is that I got married! My husband and I had a lovely wedding in Australia and spent three weeks in South East Queensland having our honeymoon.

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The Importance of Low Protein Cookery Sessions For Parents and Patients

Friday, September 26th, 2008

Fun was had by all who attended the Nutricia Low Protein Living Cookery Sessions and Activity Days throughout July, August and September 2008. In the Republic of Ireland, Nutricia held a Low Living Cookery Session in Dublin and Waterford, and a Low Protein Living Activity Day in Imaginosity in Dublin.

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Low Protein Cooking

Wednesday, September 10th, 2008

The Nutrition and Dietetic department at the Royal Hospital for Sick Children (Yorkhill), Glasgow, ran another successful Low Protein Cooking session at a local Secondary School. This is the initiative of Barbara Cochrane, the Senior Paediatric Dietitian at the Hospital. She has been doing this for over 18 months now. It is designed to teach individuals new cooking skills  and allow them to network together in an informal way, sharing the experience of bringing up a child (or children) with PKU or other related metabolic diseases.

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SSIEM

Monday, September 8th, 2008

The SSIEM (Society for the Study of Inborn Errors of Metabolism) put on another great symposium in Lisbon. They do this every year to discuss the latest results of scientific investigation related to Inborn Errors of Metabolism.

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