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  • Maternal PKU – Part 2: Twins

    This is part 2 of Angela’s story on PKU and Pregnancy.... Read more

  • Maternal PKU – Part 1

    During a recent study day in London, Angela Thomas shared her experience of tackling the subject of PKU and Pregnancy.... Read more

  • Specific nutrition as an integrated part of pressure ulcer care

    Pressure ulcers are a common problem in all healthcare sectors, affecting quality of life and increasing healthcare costs. Providing sufficient amounts of protein... Read more

  • Targeting immunity: an illustration of HIV disease

    Infection with the human immunodeficiency virus (HIV) results in progressive destruction of the immune system, ultimately resulting in opportunistic infections and AIDS. HIV-infection, affecting 40 million ... Read more

  • Immunopharmacology of non-digestible carbohydrates, a breakthrough for clinical nutrition?

    Early in human history, nutrition and pharmacology were closely linked as people derived their medicines ... Read more

Posts Tagged ‘PKU’

Inherited Metabolic Disorders

Tuesday, August 26th, 2008

Inherited Metabolic Disorders are rare but there are over 1000 known types. Such disorders are treatable with special diets (in some cases drug therapy may also be used).

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Getting back ‘on diet’ – PKU

Wednesday, August 20th, 2008

Hi my name is Andrew i am 36 years old, when i was younger i was on a strict diet which was controlled by my mum. When i got to my teens, the doctors wanted me off the diet. When the doctors told me this i said no. I was to used to the diet (low pro) however over the years things started to slip away till i was not on the diet.

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PKU and the 3 R’s

Tuesday, August 19th, 2008

I remember when I first started seeing my dietitian on my return to the diet, sounds a bit like a movie title! PKU and the return of the Diet!! She explained to me that to help maintain consistently low blood Phe levels, management will involve a three-pronged approach known as the 3 R’s: Record, Restrict, and Replace. I must Record the amount of Phe I consume, Restrict my diet to the right amount of low-Phe foods, and replace those higher-Phe foods with low-Phe alternatives, such as Phe-free protein supplements like Lophlex and Add-ins. I know this type of management is not a cure, but it has been effective in helping to prevent many of the symptoms of PKU in myself such as the drowsiness and bad temper. So remember the 3 R’s: Record, Restrict, and Replace.

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The trials and tribulations of PKU… or is it just me?

Monday, August 4th, 2008

It never ceases to amaze me how up and down living with the PKU diet can be. I’m the first to admit that for me every day is a struggle. It hasn’t really been an automatic lifestyle in… well… I can’t remember how long. Not to say that that’s acceptable, of course. It’s not, and I’m the first to admit that.

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Life & Living with PKU

Friday, July 25th, 2008

Well, I’m not sure how to start off, so forgive me if this beginning is a little bit rough! As I’m hoping to start trying for a baby soon, my intention is that this blog will follow my journey through the preconception diet and maternal PKU, but as it’s my first blog post, I suppose I should introduce myself and tell you a bit about my PKU journey thus far J I might also use this blog as a food diary, which I’m normally rubbish at keeping!

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A single mother’s perspective on PKU: Part V: Telling the father

Tuesday, July 22nd, 2008

I think this was nearly as hard as discovering that Jack had PKU. Do I tell the father that his son has PKU? Do I tell the father that he is a carrier? Maybe he already knows, maybe he has PKU himself? Do I tell the father that he is a father? He could already have children, I never really found out.

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A single mothers perspective on PKU. Part IV: What happens next?

Wednesday, July 2nd, 2008

Time seemed to have stopped after I was told that my baby had PKU. The midwife had gone and it had only just sunk in. I now had so many questions but where do I get the answers: there was no internet in those days.

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Phenylketonuria

Tuesday, July 1st, 2008

HOW IS THIS DISEASE PASSED ON?

The metabolic disease phenylketonuria (PKU) is transferred to people through the genes they inherit from their parents. There have been cases of metabolic diseases being caused from the over consumption of a certain food and also via exposure to drugs that have caused a dormant gene to become active. This is exceptionally rare though and diseases such as PKU are detected at birth.

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Metabolic Disease Awareness Week: PKU

Sunday, June 29th, 2008

This is part two in the series for Metabolic Disease Awareness Week. It focuses on the most common of these diseases Phenylketonuria or PKU (which is what it is commonly known as).

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PKU and other metabolic diseases, now and then…

Sunday, June 29th, 2008
    As part of meatbolic awareness week over in the UK, I thought I’d write this blog for people who want to know more about meatbolic diseases and what we, as medics, hope the future holds for them.

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