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  • Maternal PKU – Part 2: Twins

    This is part 2 of Angela’s story on PKU and Pregnancy.... Read more

  • Maternal PKU – Part 1

    During a recent study day in London, Angela Thomas shared her experience of tackling the subject of PKU and Pregnancy.... Read more

  • Specific nutrition as an integrated part of pressure ulcer care

    Pressure ulcers are a common problem in all healthcare sectors, affecting quality of life and increasing healthcare costs. Providing sufficient amounts of protein... Read more

  • Targeting immunity: an illustration of HIV disease

    Infection with the human immunodeficiency virus (HIV) results in progressive destruction of the immune system, ultimately resulting in opportunistic infections and AIDS. HIV-infection, affecting 40 million ... Read more

  • Immunopharmacology of non-digestible carbohydrates, a breakthrough for clinical nutrition?

    Early in human history, nutrition and pharmacology were closely linked as people derived their medicines ... Read more

Posts Tagged ‘Thoughts on PKU’

A teenagers view on living with PKU

Tuesday, June 2nd, 2009

I am 15 years old. I have PKU so cannot eat food high in protein such as most dairy products, eggs, meat or fish. Also, I cannot have any drinks or food that has aspartame in, this is a sweetener but is also high in phe which is what my body can’t deal with. Read the rest of this entry

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Experiences going off diet – PKU

Wednesday, February 25th, 2009

I thought I’d share my experiences with going off diet and my experiences with the diet in general.

As a kid, I was eating mainly carbs and fats and lots of fruit, but very small amounts. I was a tearaway with ADHD so I was burning through energy like no tomorrow. As a result, I was a pretty lean kid and my dieticians expressed concern that while I was a tall child, I was pretty light.

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PKU – What it means for my son

Friday, January 30th, 2009

Birthday cake, a hot dog, even a McDonald’s Happy Meal are all off limits to our six-year-old son James.

James doesn’t have food allergies, though. He suffers from PKU, which drastically limits his diet for the rest of his life. PKU means James’ body can’t metabolize phenylalanine, one of the building blocks of protein.

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Learning about PKU – One boyfriends odyssey!

Monday, December 1st, 2008

My partner has PKU and is showed my a few of the blogs on this site and, knowing I’m a bit of serial blogger, ask me to do something for this site so I’ve written a blog about living with someone with PKU as I’ve read a few by people with PKU and want to put across the other side of it.As you may have guessed, I am non PKU, in fact had no idea of what PKU was until I met Jill.

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Getting back ‘on diet’ – PKU

Wednesday, August 20th, 2008

Hi my name is Andrew i am 36 years old, when i was younger i was on a strict diet which was controlled by my mum. When i got to my teens, the doctors wanted me off the diet. When the doctors told me this i said no. I was to used to the diet (low pro) however over the years things started to slip away till i was not on the diet.

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PKU and the 3 R’s

Tuesday, August 19th, 2008

I remember when I first started seeing my dietitian on my return to the diet, sounds a bit like a movie title! PKU and the return of the Diet!! She explained to me that to help maintain consistently low blood Phe levels, management will involve a three-pronged approach known as the 3 R’s: Record, Restrict, and Replace. I must Record the amount of Phe I consume, Restrict my diet to the right amount of low-Phe foods, and replace those higher-Phe foods with low-Phe alternatives, such as Phe-free protein supplements like Lophlex and Add-ins. I know this type of management is not a cure, but it has been effective in helping to prevent many of the symptoms of PKU in myself such as the drowsiness and bad temper. So remember the 3 R’s: Record, Restrict, and Replace.

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Life & Living with PKU

Friday, July 25th, 2008

Well, I’m not sure how to start off, so forgive me if this beginning is a little bit rough! As I’m hoping to start trying for a baby soon, my intention is that this blog will follow my journey through the preconception diet and maternal PKU, but as it’s my first blog post, I suppose I should introduce myself and tell you a bit about my PKU journey thus far J I might also use this blog as a food diary, which I’m normally rubbish at keeping!

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